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Old Fri Aug 20, 2010, 08:43 AM
squirrellypoo squirrellypoo is offline
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Join Date: Nov 2008
Location: London, UK
Posts: 458
Thanks for the update, Serkan - those number are great! You must be really pleased.

Have your doctors ruled out infections or drug reactions for your liver results? I had really high liver function tests that came out of nowhere last September, and they did everything from ultrasounds (with high-contrast dye), so many dye-assisted CT scans I lost count, plus a CT-assisted liver biopsy, and even a lung biopsy, plus months of a daily antifungal IVs after weeks of a strong IV antibiotic cocktail didn't reduce them.

They're only just approaching normal levels now, and they never did positively conclude what caused them to go so high in the first place. BUT as soon as I stopped the IV antifungal (Caspofungin), they immediately started to come down way quicker than they were before, so it may be that it was actually making things worse instead of better.

From my point of view, the ultrasounds and CT scans were painless, and the liver biopsy was just some needles being jabbed through my abdomen (so not too bad), but the lung biopsy was super painful with a full 2 weeks of pain before I could stop with the 24hr pain medication.

So it's worth asking why they automatically think it's GvH and not other things if it means you're spared some pain!

melissa
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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