[Chirley]

hi,

Just an update on the Vidaza response.

I had a BMB 2 days ago prior to starting my 4th round of Vidaza. I had the BMB because I had shown no response on my blood counts and my doctor wanted to see if there had been any change in the marrow.

I went into day care for a scheduled transfusion today and was told that my doctor was coming in to talk to me. It's his weekend off so I knew something was amiss.

Turns out that not only is the Vidaza not working yet but that my MDS had progressed to RAEB 1. He didn't tell me the blast count and I didn't ask. I was definitely not expecting this.

So, I'm not having the next cycle of Vidaza partly to see if there is any change in the peripheral blood (good or bad) over the next month and partly to see if my ataxia improves.

He is going to start pushing for the bone marrow transplant co ordinator to speed up the search for a donor.

I had 2 units of blood today, am booked for another 2 units tomorrow and for a further 3 units in 12 days time. My ferritin is now high enough to start chelation so I guess that is another item for discussion next visit.

The good news is, I have next week off from daily daycare visits.



Bye for now.


Chirley