Since first being diagnosed in 2006, I have been on a watch and wait list. Initially all three lines, or as they say "multilinial" were below normal. I have faithfully gotten a CBC every three months with a couple BMBs thrown in along the way. By "tenths" I mean at every CBC my three numbers, W, R, Hct, Hgb drop a tenth here two tenths there, but so far have not reached that so called "critical point" when they will feel compelled to do something. Word from the V.A. which I have found is also controlled by and dictated by Medicare standards they keep lowering the bar. Right now my hematacrit is at 30 and Hbg at 10. At one time I was told this was the point to start doing something/anything, but NO they now lower the standard to 29 and 9. What is frustrating is if and when I get there, what's to stop them from lowering it to 28 and 8. Do you see where I am going with this? The "tenths" drive me crazy. Am I wrong or should I just be content to be tired all the time and watch the "tenths" drop month after month and WATCH AND WAIT. Arrrggghhhhhhhhhhhh!
