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Frustration at 10ths
Hi Dick,
I have been going to the VA for about 4 years disagnosed with MDS, they stopped watching and began treatment with Vidaza on 10/1/09 when my counts were at RBC 2.4, WBC 1.7, HGB 7.1, HCT 19.9, and PLT 17. I am scheduled for BMT as soon as all obstacles/infections have been taken care of. The red flag points for transfusion is HCT <24 and PLT <20. I am currently completed my 8th cycle of Vidaza after a 10 week layoff (all teeth were removed and other issues) and it's kinda like starting all over again. I am very thankful for the VA and know if it were not for them I would not receive a BMT, Medicare does not allow it for MDS.
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