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Amen
Quote:
Originally Posted by evansmom
Ryan -
Counts will get worse before they get better. I just wish doctors would tell us about that because it's very disconcerting when it happens.
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That's exactly how it went with me. Every morning, the counts went down unless I had a transfusion the day before, and sometimes that did not seem to help much. The doc never explained all of this to me, just said I would be in the hospital a month (only one week of which he was on rotation in the hospital; one of his colleagues saw me the rest of the time-- talk about feeling abandoned!). I don't blame the doc so much, everyone is stretched thin in healthcare, but it would have been nice to know all that I know NOW way back then....
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Male, 56, dx Nov2006 VSAA (BMA:0%). Responded to ATG/CsA/Prednisone/Neupogen Dec 2006, but relapsed in June 2007. Counts are responding to using CsA 200mg bid alone since Jun 2008. Last PRBC tx: Jul 2008.
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