Quote:
Originally Posted by Laura
Can I ask how old you are? It almost seems like you need a second opinion? Although your counts aren't horrible, you don't want to have to be getting transfusions all the time either (if it comes to that). Where are you being seen?
Laura
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Hi Laura and Linda,
Thanks for the replies. Sorry not to have posted age- it's 69. I've always been very active and age isn't my problem except in treatment, I think. I'm being seen at Emory for primary care and Piedmont for follow up. I got a consultation with Dr. Brodsky at Johns Hopkins about a year ago so I think I'm up to snuff on options. One other suggestion from Emory was to consider a NIH clinical trial in Maryland, but the ones I looked over were using meds I'd already taken and had serious side effects with. I agree that the numbers aren't terrible but Emory gives red cells when HG is > 8.5 and I'm not far from there. I researched M D Anderson before I saw Johns Hopkins and they didn't seem to have any experts in AA, at least when I checked.
Linda, I don't post anywhere else, so I guess it's another pilot. Thanks for asking. I agree about support and information here. Whoever said that words can never hurt you didn't deal with cancer! I'll keep you posted when I get my next CBC. Thanks for your ideas and help.
Flyguy