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Old Thu Sep 2, 2010, 06:03 AM
squirrellypoo squirrellypoo is offline
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Join Date: Nov 2008
Location: London, UK
Posts: 458
Grrr. The dermatologist was convinced that 6 weeks on Isotretonoin (accutane) would clear up my face of all this horrible post-transplant hormonal acne.

It hasn't. It's just made my skin peel off in rather large chunks, leaving big red marks that look worse than the acne. Plus half the acne is still there, AND the corners of my lips have cracked so bad they split when I open my mouth to eat anything. I'm putting on e45 and Savlon constantly but it's just not doing much. I see the dermatologist again on Monday, but I'm getting very anxious and depressed that my face is going to look like it's got leprosy for all my wedding photos and I don't know that there's enough time to back out of it now for it to recover.

And my visit with the gynae/endocrine consultant two weeks ago was truly depressing. For eight months now he's done absolutely nothing, and keeps saying "oh you want it fixed so quickly, these things take time, just keep waiting and it'll fix itself". Uh, so it hasn't fixed itself in eight months, when on earth do you think anything is going to change?? It's like that quote "I've tried nothing and I'm all out of ideas!". And then I found out why - he's retiring next month. So he clearly just hasn't cared what happens to me because he's leaving anyway. And I have to wait another four months now to see his successor. Before he said he was retiring I was prepared to get a second opinion anyway because he's been so useless.

Wedding stress is not helping any of this, either. No one ever warned me that the transplant might screw up my hormones so badly that I wouldn't be able to have any sex life whatsoever post-transplant (and until when? who knows!). You can't get a second chance at your wedding night, or your honeymoon, and I'm almost in tears at how this crappy gynae/endocrine doctor has failed to help me at all. At least the dermo is trying!
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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