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Hi Raina,
I don't think a diagnosis of MDS can be made without chromosomal abnormalities, blasts, or significant dysplasia. Did Cleveland Clinic also recommend the Vidaza? That's a pretty powerful drug to take without a definitive diagnosis. I would get a third opinion involved.
Cyclosporine takes about 3 months to build up in your system to therapeutic levels. So, you may have stopped it too early to see any effects. The side effects can be rough when on the higher dosage and will vary person to person. Most people tend to tolerate it pretty well though (at least that's what my doctor told me). I am taking 4 mg/kg/day now and am not really bothered by it. What was your dose? What are your counts?
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58 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
Last edited by Hopeful : Tue Sep 7, 2010 at 12:26 PM.
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