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The classification tool is very helpful but I agree with Lisa that it might not be a good idea to include survival times, even though they are just statistical means--patients should discuss that with their own physician, based on their own treatments and experience. The tool can certainly help people wade through the classification jargon to reach a point of being prepared to ask better questions of their medical providers and to do research based on their own classification.
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Karen, age 62, dx MDS RAEB-2 1/8/10: pancytopenia WBC 2.7k/Hgb 7.4/Hct 22.1/Plt 19k; complex cytogenetics -3,del(5)(q14q33),-6,+8,+mar,17% blasts. MUD BMT Johns Hopkins 11/30/10. Dx tongue cancer 8/31/12. ok now. blog mausmarrow.com
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