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I, too, agree with Lisa Z. When my husband was first diagnosed with MDS in May 2010, the doctor said his prognosis was 1 to 6 years. We were in shock, to say the least! But after coming home and reading and learning as much as I could about MDS, I found that people, even with his classification, have lived much longer. In addition with all the ongoing clinical trials the prognosis today is much better than five years ago.
Even now, four months into treatment, my husband still hears those numbers though and it is all I can do to keep him upbeat and positive.
I think it's good to have the classification tool but I don't think it's good to have the survival times listed.
Anyhow, just my two cents!
Linda
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