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Old Sun Oct 10, 2010, 12:24 AM
Debbie W Debbie W is offline
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Join Date: May 2010
Location: NJ
Posts: 202
Lori

Sorry you had join this club, but happy you are reaching out. It was relatively uneventful for my husband, one day of fever, some swelling of the legs treated with Lasix, really no nausea and except for the one day when he had a fever he ate most meals. Somethings did not taste right, for example soda had a metallic taste so he avoided that and also said that foods did not taste bad, they just did not have much taste. He also found it hard to concentrate, whether a movie or a book, so some short stories, a TV series and some easy cross word puzzles might be more appealing. You can also expect some transfusions and laps around the floor, he did morning, afternoon and evening to break up the day. He did lose his hair and finally had it cut very short sometime in the second or third week. He had the cytarabine for 7 days and daunorubicin for 3 days, then three weeks of monitoring and a BMB a week after discharge.

Did they discuss trying Dacogen or Vidaza before proceeding to induction chemo to see if they would reduce the blasts enough for transplant? My husband is on Day +8 after transplant

Wishing you well and hoping that your brother is a match!

Best regards,
Debbie
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Debbie, wife of Mike age 58, diagnosed RAEB 2 April 2010. Initial blast count somewhere between 10-15% then 20% after two treatments of Dacogen. Completed induction therapy 8/2/2010. BMB 8/31/10 - 4% blasts. SCT 10/1/2010. Relapsed in 10/2014, second transplant from same donor on 12/31/2014.
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