Julie I know kind of what you are going thru with family. My dad has mds and I have done so much research on it for myself and stepmom. The rest of the family really have no clue about it. I found one link to get information but not the one I wanted to find for you. There is a place to get free booklets but darn it I can't seem to find it. this one I am giving you has a book you can buy but I think it also has others for free. I hope you can find a way to get your family to understand more of it.
http://www.myelodysplastic-info.com/...asticsyndromes