A consultation with a transplant center is a good place to go for another opinion. When my husband was first diagnosed, and 4 or 5 years into the disease, we consulted with a transplant center. THEY told us that he was not yet a candidate for transplant because of decent counts no blasts, etc. Ultimately that changed (10 years later) and he did have a transplant. It does seem though that recently, transplant is given as an option soon after diagnosis. Having said that, there was no pressure to transplant. Your options are laid out for you and it is ALL your decision. It is a wonderful education process to talk to a transplant doctor even if that never becomes a reality for you.
All the best to your daughter and you.
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Mary, wife of Mike age 70; diagnosed MDS RARS 1999. Tried Vidaza, Revlimid, and Dacogen. SCT 10/1/09 at U of MI; induction FluBu2; sister perfect match donor. 5 years out, little to no GVHD. Off all meds. God is good
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