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Old Fri Nov 12, 2010, 01:08 PM
Greg H Greg H is offline
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Join Date: Sep 2010
Location: North Carolina
Posts: 660
Talk to lots o' docs!

Hey Kim!

I second what the other have said and would add that different docs can have very, very different assessments of the best treatment option. I really think you have to listen to all of them, understand why they are recommending what they are recommending, and then (to paraphrase a former POTUS) you are the "decider."

I have huge respect for my transplant center doc at Wake Forest, and a huge amount of respect for the NIH doc running the trial that I'm about the enter.

The former -- backed up by her whole team, including the docs specializing in MDS drug therapy -- felt I should have a transplant now, despite minimal quality of life impact of my anemia, minimal blasts, etc.

The NIH doc said, given my chromosomes and low risk profile, if I chose not to participate in his clinical trial, he would recommend that I watch and wait.

My local hematologist wisely observed: "When you're a hammer, everything looks like a nail."

For me, I can't just weigh the opinions and credentials of those two fantastic docs, or flip a coin. I have to understand why each of them is recommending what they are recommending and then decide where to place my bets.

Good luck with your decision.

Take care!

Greg
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Greg, 59, dx MDS RCMD Int-1 03/10, 8+ & Dup1(q21q31). NIH Campath 11/2010. Non-responder. Tiny telomeres. TERT mutation. Danazol at NIH 12/11. TX independent 7/12. Pancreatitis 4/15. 15% blasts 4/16. DX RAEB-2. Beginning Vidaza to prep for MUD STC. Check out my blog at www.greghankins.com
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