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Old Sat Nov 13, 2010, 11:55 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
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Quote:
Originally Posted by Lisa V View Post
Generally speaking, this is true, but the figures I've seen for IST cite a relapse rate of roughly 35% at 14 years, for both children and adults. If I interpret that correctly, that means that 65% of responders will NOT relapse, at least not within the time period measured. I don't know of any statistics for longer periods of time, but if there were, they would probably be outdated since protocols and methods are constantly being improved.
Hi Lisa,

My comment was more with regards to 10 year survival than to relapse. The papers that I have read put 10 year survival for IST at 73-75% for patients younger than 30, 66% for patients 31-40, and 47% for patients older than 40 years. I don't know if these numbers include responders and non-responders. I've asked my doctor what happens if you make it the 10 years, but he only emphasized that in my age group only 47% do
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58 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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