Hi Birgitta,
your posting really provided excellent special information.. By your membership in the other forum you got a lot of knowledge!
Maybe it would be advisory if Bepob contacted Kirby Stone for more precise informations about how he and his doctor managed the Promacta-medication..
Promacta is - as i understand - already approved, - for ITP and under these restricted provisions. If Bepobs father gets the medicament by Promacta Cares, all the stuff i wrote in the other thread regarding to extended access is not necessary in this case.
Kind regards,
Margarete
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Margarete, 54, living in Vienna, Austria,
MDS/AML M2, diagnosed 9/2007, then Chemos, aSZT 4/2008, chronic GVHD
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