[squirrellypoo]

Originally Posted by mscrzy1

squirllypoo, When you saw a relapse, was it a slow decline for you in counts or was it dramatic?

Mine was very fast indeed. The first signs were burst blood vessels in my eyes in October (plt of 50), I was getting transfusions in November and December, they started the BMT process in January, and by June I was getting four transfusions every week (2 red and 2 platelets). I don't think I would've lasted much longer if I hadn't had my transplant when I did, to be perfectly honest.

But we have no idea if my counts were slowly declining for years or not, because they were never checked (because no one told us this would ever relapse!). So it's hard to say. But I was very, very healthy and an avid runner for years, so I'm almost sure I would've felt an Hb decline more acutely than most people had it occurred before that October.