[Mary4Mike]

My husband's transplant was exactly one year prior to yours. He experienced elevated liver enzymes also. They did a liver biopsy because they suspected his was due to elevated iron. He had had over 140 units of packed red blood cells prior to transplant for his MDS symptoms. This turned out to be the case so they began phlebotomy once a month. His HGB was over 16 so they went for it. They said that they don't usually do phlebotomy on a transplant patient until one year out, but his counts were good and they really wanted to get the enzymes down. His enzyme levels are normal now, but he is still doing phlebotomy to bring his ferritin levels down further. They never ordered steroids for him.

You asked about what you should or should not do. I guess it is common sense; what you feel you can do, and if in doubt, ask your doctor or transplant team. I don't know how your center is set up, but our doctor is an email away with almost immediate responses. I believe the sooner you can return to normal life the better your revovery. Mike attended Christmas Eve service at our church and in January of 10 began attending Sunday services again. He was just careful about shaking hands, etc. We always carry hand sanitizer.

I am sure that it is the same with most transplant patients....Mike says he has a feeling of well being now. It has all been worth it.

All the best to you and we are here if you have anymore questions!

Mary