Quote:
Originally Posted by Dick S
I wish I had an answer for you, but I don't even have an answer for myself. I am MDS, so says the Hema/Onc Doc, but I have had to watch all three lines slowly, ever so slowly, decrease for four years now and I am still not into any protocol. As the counts inch downward, CBC after CBC, all I get is "not yet" "watch and wait" "it has to get worse before............blah blah"! I hate it.  |
Lisa and Dick: thanks for responding. It is so very difficult to hang in there; not being sick enough, yet, not feeling well either.
Since I am considering going for another opinion about just waiting or investigating "options" and I don't want to participate in clinical trials at this time, anyone out there who sees Drs. Brodsky or Maciejewski? Any east coast AA patients with suggestions on who to see??
