Hi to my MDS colleagues,
Wanted to update my Roller Coaster Ride. I've had a downhill run for a few months, hopefully it's now going uphill again (uphill is Good).
My blasts increased to 17%
on 1/18/11, they were 10% on 9/14/10. The Hgb also has had a slow but consistent decrease to 6.0
.
We changed my complex drug protocol:
1. changed Thalidomide to Revlimid on 1/27/11.
2. changed Procrit 60, 1/wk to Aranesp 200mgc.
3. continuing Dacogen(decitabine), one day/week at 10 or 15mg.
Added Iron infusions for last 7 wks, may stop this soon.
Continuing Promacta(elthrombopag) at 75mg/day.
Since restarting the Revlimid the Hgb stabilized and has increased to by 15% during the last 3 weeks, 6.0 to 6.9; and is on a sharp linear increase.
I've been blessed to have the rare second response to an MDS drug that was started earlier. Two doctors have indicated that this can happen in some cases.
We are hoping the recent apparent good response will continue for a long time. I'll update the results in a few weeks-months.