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Old Thu Mar 10, 2011, 09:59 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 769
Cyclosporine and sun don't mix. For me, it actually feels like my skin is burning, especially on the higher doses. I would recommend a hat and the spf clothing and reapplying sunscreen and lipscreen *often*. Cyclosporine is linked to increased risks of skin cancer, so watch your son's skin for changes. Also, make sure he stays well hydrated, as it is hard on the kidneys as well.

I'm still out in the sun, but I keep covered/lathered up and will seek shade whenever possible.
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58 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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