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Is there a reason for you to keep one in since you are no longer getting transfusions or IV drugs? I would consider getting it pulled since there's always a risk of infection.
John had a double lumen hickman and we flushed it every day in between appointments. There are other brands that don't require daily flushing like a double lumen groshen (sp?). We changed the dressing and the caps weekly and flushed it daily.
As Karen says, it's pretty easy and you can do it yourself. They would have to set you up the supplies and teach you how to do it.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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