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Hi, I asked the doctor about having my port taken out and he was adamant it should stay in. Both my doctor and the day care nurses say that it needs to be flushed with Saline and then locked with Heparin every 2 months. BTW it's only ever been unused for 2 months once in three and a half years so it hasn't really been an issue.
Regards
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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