Jules, you sound so down. I wish I could help but I see you are doing the right thing and getting the help that you need.
How about this.....Day 1 of transplant is also day 1 of your new life. The past will be the past and your future whatever you decide to make it.
I don't know how much help I'd be but I could visit you in hospital if or when you come back to Brisbane for a transplant.
You have a lot to deal with on your own and it sounds like you're dealing with it the right way.
My thoughts are with you.
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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