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Hey Greg
Very very interesting news about the ferritin levels. Bruce is taking wheatgrass tabs too, and his ferritin came down last time, hmmm.
You poor guy, that BMB story is awful. Bruce has had similar awful, and painful experiences with the local hematologist.
The last time local doc did it, his specimen wasn't good enough for the second opinion doctors. Bruce had a nurse practioner in the hospital in Portland do another one a few weeks after the local doc's -- an entirely different experience.
You are truly brave to have endured what you did.
Good news here. Yesterday, on the way back home from our vacation, Bruce had a CBC done, and he is holding his own. Hgb 9.0, it was 9.1 three weeks ago. He's still feeling well, and has even managed to avoid catching this cold that I've had for 2 weeks.
You put it very well, the living with uncertainty and waiting for results of blood tests. We tried while on vacation to let that go. We weren't totally successful, but came back recharged. We realized while we were gone how much energy and time we have put into worrying and wondering and doctoring -- and how valuable some time away was.
Hugs, Catherine
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Catherine, wife of Bruce age 75; diagnosed 6/10/11 with macrocytic anemia, neutropenia and mild thrombocytopenia; BMB suggesting emerging MDS. Copper deficient. Currently receiving procrit and neuopogen injections weekly, B12 dermal cream and injections, Transfusions ~ 5 weeks.
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