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Old Thu May 26, 2011, 09:11 PM
Lisa Z Lisa Z is offline
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Join Date: Nov 2008
Location: Ft. Washington, PA (Philadelphia area)
Posts: 111
Going OFF VALTREX

My local dr. and I decided I would go off Valtrex today. I have been over the 200 mark for my CD4 counts for a while now. When I was at the NIH March 1, I was over 200 and they told me to stop Pentamidine and Valtrex. I stopped the Pentamidine, but wasn't comfortable stopping the Valtrex. Now, however,my cD4 count is about 380, so my local dr. and I decided to stop the Valtrex now. I think the Valtrex was causing my LD count to be high and I really don't want that high. My local dr. also feels that being off the Valtrex, might help my CD4 count go even higher, more quickly. also, in response to another question about my immune system, I was told "You have nearly completely recovered your immunity. Just a few lymphocyte populations are low, but none are critically low."

Did anyone experience any viral problems after going off of Valtrex? I'm nervous, but giving it a try.
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Dx. 6/08 with AA, then changed shortly thereafter to MDS. Campath trial at NIH March '09 and have been transfussion independent since June '09
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