Sorry to hear your condition has become severe. Sick Kids is a true Centre of Excellence in Ontario and I'm sure that they will soon put you at ease. Don't be afraid to ask your questions here and when your treatment begins. There's no such thing as a stupid question. This is a great forum for all ages.
During my times in hospital I found my favourite music (MP3) really gave me relief and helped get my mind off the medical reasons for being there. Maybe that will help you a bit too.
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Ric: Low-risk MDS (blasts <4%); 4 cycles Revlimid no positive response; PRBC transfusion dependent; so far, 392'units' over 8 3/4 years; BMB #4 (15/04/01) shows evolution to AML (blasts 20-30%
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47,XY,del(5) (q22q35),+21[24][cp24]/46,XY(1).