By the way, my Dr told me the other day how much he appreciates the fact that I am informed and so involved in my care and treatment.
Thanks to Marrowforums, I am able to familiarize myself with the necessary jargon and latest information. I present him with copies of some of the papers that I have found here~fortunately, he is not the type who is threatened by that. We feel like we are a team in this fight!
Let's face it--each doctor has hundreds of patients with all types of scenarios--blood disorders being particularly variable.
I find this site an invaluable resource tool that enables me to feel that I am at least doing something to insure that I am my own best health advocate...I couldn't have done this without all of you! I feel less like a victim of a terrible disease and more of a "participant" in a maze,
determined to discover the way out!
(or maybe I've watched
way too many episodes of "Survivor"!
)