Have you checked out Johns Hopkins yet? They have done quite a bit with MDS and it's closer than NY. John was treated for his SAA there and they were great.
Karen had her BMT for MDS at Hopkins.
http://forums.marrowforums.org/showthread.php?t=1434
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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