I too would find it very troubling that they are not willing to take a look at it or at least give you some insights as to maybe why your platelets have dropped.
Is Budesonide a steroid? Stopping it may have temporarily disrupted your system enough to effect your platelets. Steroids are very confusing for the body.
Regarding your question on Dana Farber....Why not give them a call and see if they can offer any peace of mind. What did your GP say?
I wish I could offer more support. Just know that you are doing the right thing and you will prevail.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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