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Jill;
I hope your vacation plans can take place. My husband took a tent camping trip for a week about 3 months after his MDS diagnosis in 2006. One day he laid on the cot all day but most days he managed to do some things. He was younger, 75.
Has doctor said anything about EPO such as Aranesp shots? Don has never had chemo but he gets Aranesp, now up to 300 mg every two weeks and it keeps his hgb in the 9 to 10 range. He hasn't had to have a transfusion since 2007. We feel very, very good about that. He does get tired easily but he has learned to adjust to that.
Good luck.
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Joan, wife of Don, 80, diagnosed MDS-RCMD 2006, on 300 mg Aranesp every 2 weeks. Only RBC affected by MDS.
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