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Old Sun Jun 19, 2011, 10:59 PM
Laura Laura is offline
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Join Date: Aug 2006
Location: Minnesota
Posts: 433
Quote:
Originally Posted by Marlene View Post
Glad to hear you are with someone who will look at all you have going on. The gut connection is soooooo important to health. People don't realize how many illnesses are tied to the health of our GI system. Many auto-immune disease have a direct correlation with GI unbalances.

Creon is the digestive enzyme used in Cystic Fibrosis patients since they are not able to secrete them.

Also, you will be amazed at how much gluten is in processed foods. You will also have to find out if your meds are gluten free. This is a tough one to do and will require some advanced meal planning.

Have they considered putting you on a prescrip probiotic? Possible the one they use for Crohns/IBS patients?

Sounds like you are good hands and it's about time!!!!! So sorry you had to go through all that you did to get someone's attention.

Hi Marlene,
Thanks for all the great ideas, as usual, you are a wealth of information!

Thankfully (well not really, but yes) my brother just got dx with Celiac disease about 6 months ago, so I am a little knowledgeable of all the hidden gluten...and I can always ask him

If you have a list of hidden items of lactose or gluten let me know...

Mayo has tons of pharmacies...I always go to the same one and they know me well. I call and they know me without me having to give my name I called and asked them about the medications and they looked them all up. The majority of my meds have lactose in them...generic we might we able to work around...the name brand obviously we can't...I was thinking that taking Lactaid with them would be okay? Going to email DF and ask!

Laura
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Laura; dx SAA; MUD transplant June 18, 09; ITP June, 2011; fighting multiple complications/GVHD and now low counts again...
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