Quote:
Originally Posted by evansmom
ITP ugh...Well the prednisone is taking care of that for now but you'll need to get off of it at some point soon. Maybe they'll give you a course of Rituxan however, before that, I'd like to see them definitively (if it's possible) rule out lupus because if it's a lupus flare, you may not need further treatment and can come of the pred until another flare happens.
It may not be lupus at all, but I did wonder about it earlier as did you with the ssa/ro antibody (highly implicated in lupus) and you'll want to get the right treatment.
The comment before mine was interesting in that her brother's ITP diagnosis was changed to a mild case of lupus.
Talk soon,
Nicole
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Hi Nicole,
Thanks for the information. I agree about the lupus thing. I have yet to hear another word in regards to that high level even though I have been told they are checking on it. The first opening is in August for rheumatology so I should call over and work my magic on getting a sooner apt! I agree about that comment as well! I wonder if Lupus could be the cause for my severe fatigue??? That is still the big mystery...
I have no plan outlined for the Prednisone or nothing...So I just continue on labs M/Th and 60 mg Prednisone daily. The past few days I have had severe HA, which I usually get while on Prednisone because my BP usual skyrockets. Also my sugars go crazy. So I got an apt with my primary who hooked me up with Norvasc and insulin today. So I am thankful that I can get these high BP under control to get rid of the nasty HA I have had for about 2 days straight.
In talking with Dana Farber, he agrees with the dx of ITP and thinks I should try weaning off the Prednisone sooner rather than later. He also checks in frequently to see how the diarrhea is going! So nice of him.
Laura