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Old Fri Jun 24, 2011, 11:46 PM
Laura Laura is offline
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Join Date: Aug 2006
Location: Minnesota
Posts: 433
Quote:
Originally Posted by Marlene View Post
Well that't interesting about your brother.....Celiac does run in families. Thinking was that those with Irish decent were more likely to have problems with Celiac. However, more varied cultural backgrounds seem to affected also. There are lots of false negatives when testing for gluten/Celiac and many go for long time before damage sets in. Here's a link with a pretty good list on Gluten/lactose foods. It's from an Autism site but still applies.

http://www.tacanow.org/family-resour...ces-of-gluten/

Also, you should find compounding pharmacy for your meds. Check with your insurance to see what they pay and if your doc needs to write scrip specific for it. Life Extension has a mail order compounding pharmacy with some pretty good rates. You should be able to find one or two in your area also. Just google compound pharmacies.

I know all of this is a pain in the behind but it can really help you figure out how to get this monster under control.

Here's gluten/lactose free probiotic. Jarrow is very reputable brand. http://www.jarrow.com/product/535/Ja..._Allergen_Free

I'll keep an eye out for other resources.
Thanks for the information Marlene. Mayo has its own compounding pharmacy so I can utilize that if need be. At this point I am willing to do pretty much anything to have my life back!!

Thanks again, Laura
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Laura; dx SAA; MUD transplant June 18, 09; ITP June, 2011; fighting multiple complications/GVHD and now low counts again...
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