Thread: Now what?
View Single Post
  #34  
Old Sun Jul 3, 2011, 12:30 PM
cheri cheri is offline
Member
 
Join Date: Nov 2010
Location: Tuckahoe New Jersey
Posts: 243
Onocova

Hi Paula!

I thought we had communicated before and yes we did, back in Jan and Feb~ I still have our PM's!
I never really did well on Vidaza--my numbers were always down and I've always needed platelets and often blood.
Did your Mother start with MDS or AML?
The clinical trial I am considering is specfic to AML, which is why it is so appealing.....Also, my insurance doesn't cover NY, so I wonder if they would cover any parts that the trial didn't cover..I appreciate your input...I am going to gathter that Estybon information for a later date and may contact you....
SO glad to hear your Mom is hanging in there!
__________________
Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
Reply With Quote