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Old Tue Jul 5, 2011, 02:48 PM
celebrations celebrations is offline
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Join Date: Jun 2007
Posts: 34
Hi Andy,
may I ask, what type of MDS you have...and what your symptoms and therapies are like ?
I am just at the point of retiring with 54, because I am not able any more to function as I should in a principal's position, suffering from severe fatigue due to anemia. I have delt with this for a couple of years, but it became worse and worse. There were times this spring I was that tired, feeling to go home and lie down, at 11 am in the morning after three hours of work...but of course I stayed and continued working for another six or seven hours.
Going to bed right after, without feeling any positive effect of the recreation in the next morning after 10 hours sleep.
I could definitely not go on like this.
Tomorrow will be my last day !
On one hand I am released not to have the pressure anymore, on the other I completely understand, what you say and feel about your retirement.
I will continue giving four lessons per week. Besides I already work in patients' support groups and I am a patients' advocat.
I think these tasks will help me to get over my breaking up with the job.

Maybe you could do some honorary work too?
Good luck and nice to meet you here,
Bergit from Germany
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female, 54, MDS-RCMD, trisomy 8, dx 2006, response to EPO and therafter VPA only for a couple of months, transfusion-dependent twice a month, watch&wait for SCT somewhen in the future with my brother as a donor
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