Quote:
Originally Posted by Polly S
Melissa, do you mind me asking what the problems are that you have had since coming off Northisterone?
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To put it mildly, it was like I had menopause and puberty at the same time. Off the top of my head - hot flashes, zero periods, hair loss of my eyebrows and arm hair only, vaginal dryness, zero libido, and HORRIFIC acne the likes of which I'd never seen even as a teenager. Acne so bad little old ladies came up to be on the street and told me to "drink more water, dear" like I was some idiot who brought this on herself.

The acne and lack of eyebrows were the most humiliating, but the loss of libido has been the most difficult to fix.
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding!

I've run 5 marathons now!! (PB 3:30!)