Greg
I'm sorry to hear that you have been determined to not have responded to the Campath. I am sure, however, with all the research you do, you will move on to something that will, perhaps, work well for you
I am anxixous not, to talk w/Dr. Olnes since he appears to have some data that he discussed with you in regard to Campath patients who have relapsed. I'l like to know the percentage and how long it was before relapse.
I see my counts (after 2 yrs. and 5 months) very slightly going down. Nothing to worry about unless it continues!!! But, I am getting a little nervous!
Try to enjoy the rest of the summer. Keep us posted on what you decide - after your BMB results come back. AND, you make an excellet point about the BMB. My last 2 at NIH have been horrible, and they do sent their cytogenics out, just like our local labs, so why have a "fellow" do the procedure when you can get a doc or nurse who does them all the time, without all that pain!!
good luck!
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Dx. 6/08 with AA, then changed shortly thereafter to MDS. Campath trial at NIH March '09 and have been transfussion independent since June '09
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