Thread: MDS with 5q-deletion - urgent help
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Old Tue Sep 6, 2011, 09:59 AM
layla g layla g is offline
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Join Date: Sep 2011
Location: Australia
Posts: 14
MDS with 5q-deletion - urgent help
my mother is in Iran diagnosed with MDS, she is very sick, she had 2 transfusions in 4 weeks. I'm in Australia, trying to understand the disease. Doctors in Iran have given her 5 months. I went to a specialist in Perth(Aust.), he prescribed Revlimid, she is on Talidex 100mg, unfortunately it is not doing much. Due to the sanction, not many drugs are allowed to be sent to Iran. I really do not know what to do! Can any body suggest any thing......
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layla, daughter of Zaree 74, diagnosed MDS on Aug2011,currently on Talidex100mg and Transfusion. It is not working!
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