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Old Wed Sep 14, 2011, 05:12 AM
squirrellypoo squirrellypoo is offline
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Join Date: Nov 2008
Location: London, UK
Posts: 458
Just a few updates:

1. I've got five more days to go on the isotretenoin (accutane) to finish the course, even though the hormone-related acne has been gone for a good year or two. The dermatologist doesn't want to see me again!

2. The new gynae/endocrine unit at Guy's is GREAT. They have definitively said now that I am in early menopause, and given me an HRT patch (Evorel Sequi) which is supposedly the best for libido. It's one type of patch for two weeks, then a different type for the other two weeks. The first patch is WONDERFUL and fixes all of my issues and is fabulous. The second patch - meh. But half the month is better than none at all, and I'll see if I can get them to tweak it at all when I'm back there in February.

3. HOP appointment on Monday, and my counts are still great. I only got an oral count but it was something like Hb 13 platelets in the 200s and neutrophils in the 2s. I've had my MMR and chicken pox live vaccines, and HOP want to stop my Acicolvir now, too. So I'm finishing up what I've got (a month-6wk supply) and then I just really need to be on the lookout for shingles reactivation. But they don't want to see me until the end of January, and they say my liver counts are much better now, too.

So - no hospital visits until after Christmas! Though I will need to stop in at the GP at some point and get a flu vaccine...

(And I still walk 6km to/from work every day in addition to the 20-25km I run every week and the heavy lifting and DIY work every weekend while we're renovating our barge)

Oh and we're off to Hungary next week for our anniversary.
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)

Last edited by squirrellypoo : Wed Sep 14, 2011 at 05:13 AM. Reason: added Hungary
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