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Alice,
The first cycle of the trial we had to go once a week for a month. He took the pills for 7 days at home. Then we were supposed to skip two weeks, but we had to get the labs checked on the off weeks. We decided to go back to Emory for the labs as our regular oncologist does labs but not blood transfusions. So for us it meant going back to Emory the two off weeks also.
On the second cycle, which we begin next Wednesday, we begin on Wednesday and don't have to come back for 28 days for the study itself. However, we will still have to get lab checks and blood in-between, if needed. If you have a place locally that you can get labs and blood, if needed, then you would just have to go every 28 days to get the clinical trial drug once you begin cycle 2.
Hope this made sense.
As you may have read, we were hoping to do the Promacta trial at NIH but when his blasts increased to 10%, it disqualified him.
While I'm trying to be optimistic that the Sapacitabine will help him, I'm also constantly reading about other drugs and treatment options.
Good luck and keep us posted.
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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