[layla g]

It's so hard to know what my mother has since there isn't any good doctors and all the trials and medicine are not available in Iran. I saw a hematologist in Australia and showed him by mothers bone marrow results 2 months ago and he suggested using revlimid. Since then the doctor in Iran said that her original diagnosis of MDS-5q deletion has turned into AML. He started cytarabine but without him knowing we were giving her revlimid (as he didnt accept the use of revlimid when we initially presented this option to him) Her platelets dropped to -4. The specialist in Australia suggested prednisolone for 1 week, followed by danazole. Since her condition has worsened, the doctor is telling us that she would not last for more than a couple of weeks. We felt that the cytrabine had dropped the platelet count. We stopped cytrabine and revlimid was stopped on the advice of the specialist in Australia. She has since yesterday been feeling better and has had 10 platelet units administered. Her platelet count is increasing and we do not know whether to continue administering prednisolone since the specialist in Australia suggested to take it for one week and the one week is over on Monday. We are at a point that we do not know what to do and the specialist in Australia is not prepared to suggest anything anymore. I cannot move her from Iran since she is weak so does anybody have any suggestions as to what to do?