Thanks Marlene and Lori for responding. I guess we will just have to wait and see what the biopsy tells us. I will be shocked that anything significant is wrong because he feels so good! The monthly phlebotomies were suppose to take care of this. It has lowered his ferritin, but like I wrote, the HGB keeps trending up. The doctor said, "P
erhaps your body just really likes your sister's cells!"
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Mary, wife of Mike age 70; diagnosed MDS RARS 1999. Tried Vidaza, Revlimid, and Dacogen. SCT 10/1/09 at U of MI; induction FluBu2; sister perfect match donor. 5 years out, little to no GVHD. Off all meds. God is good
