Hi fellow MDS colleagues,
My last post in early Aug had a good platelet recovery with Nplate and restarting Thalidomide for the 3rd time, Hgb bottomed at 4.6; then the Hgb increased at a rapid rate to current value of 10.3 on an increasing track.
Platelets have held in 140-160 range on Nplate. Low dose Dacogen continued on the 1 day/week regimine.
Overall the counts have been increasing and I feel better
, however a BMB on 9/20 had blasts at 25%
. Cellularity was better and no chromosome abnormalities.
We think the Nplate may have increased the blasts and have stopped it to see the effect on platelets. If they drop below 50 we may add it occasionally.
At this point staying on Thalidomide 75 mg/day(avg), Dacogen 15-20 mg/one day/wk, and occasional Nplate.
Read good quote: "Don't worry about the things you can't do. Just get on with the things you can do."
MDS may limit our physical ability to some extent but we can still do many things.