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Old Fri Oct 21, 2011, 07:05 PM
Darice Darice is offline
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Join Date: Jun 2011
Location: Colorado Springs, CO
Posts: 91
Red face Can I Breathe Now? t-MDS

I kind of keep holding my breath wondering what's going to happen next . . . and we've had plenty of problems . . . but my hubby's blood counts seem to be holding their own pretty well (he'll never be normal, of course) with just a Neulasta injection every two weeks. I can't quite get comfortable with this because I know that the treatment-related MDS is harder to treat, has a poorer prognosis, and that the chromosome 7 involvement makes things more difficult . . . it's like I'm waiting for the next shoe to fall, but I'm sure not going to look a gift horse in the mouth. I just don't know whether I can relax. Is there something I should be watching for or doing differently? I know that statistics are always behind the times, but we aren't benefitting from any new-fangled treatment . . . just good old-fashioned Neulasta. Guess I should just be thankful it's working.
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hubby 73, dx NHL 2001, CNS involvement. SCT (auto) 5/08 [dx UTUC renal pelvis, 2010/surgeries/MMC], MANY recurrences, chemos, surgeries, rad. dx t-MDS 3/11: IPSS 1.5 (Int-2); MDA 11, RCMD trilineage, inc. Fe, ring sideroblasts, 7q del/mono 7 (51.5%), 46,XY,t(6,17)(p22;q25)[4]/45,XY,-7[4]/46,XY[12].
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