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Hi Survivor Girl
I've used Revlimid successfully without -5q. It helped my Hgb but after 18 months it caused the platelets to drop.
On Medicare-D the drug should be covered, but it may not on non Medicare drug insurance; in my case it was covered on both.
It is expensive but if you are on Medicare-D you can get copay assistance from other organizations assuming the family income is less than about $73k, this does not include income from IRA withdrawals. Two organizations that can help are: Patient Access Network and Chronic Disease Fund.
Of all the many drugs I've taken during almost 8 years with MDS Revlimid has been the easiest to take with the fewest side effects in my case.
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Kirby71, RAEB2 dx 2/04, Thalidomide 30 mo, Revlimid 18 mo, No resp Vidaza
6/09 2nd Thalid use, Promacta, Lowdose Dacogen added 10/09 at 40% blasts. 5/11 BMB-blasts 8%.
2/11 2nd Revl restart=good resp, Platelets drop 6/11, 3rd Thalid,+Nplate+Dacogen. 7/12 Cnts stable for 10 mo.
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