We have a home in Florida, but until this diagnosis in June we both worked overseas. My husband is still in Africa. I am an only child, so there's not much support from an extended family here.
Unfortunately, the doctor told dad he had a 50% chance of surviving past x-mas, so he has taken that at face value. I don't think that will be the case at all. After joining this forum, I'm starting to think that I should talk to his oncologist this week and get specifics about his blood work/biopsy. Looking at the last CBC on 9/27 it appears that only the WBC and platelets are affected.
Any suggestions about intelligent questions to ask would be appreciated. I notice that you have loads of scientific-looking data - and you sound so well informed!
It's wonderful to hear that your husband continues to tolerate this Neulasta (?) well. Does he suffer from depression? Sometimes I wonder about suggesting Zoloft or something to his hospice nurses. They seem so keen on drugs and pain meds - which I think are most unecessary for MDS at dad's stage.
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My Dad - 83 years old, diagnosed 5/2011: Pancytopenia w/myelodysplastic features - subclass uncertain. Finished Vidaza 0n 9/2011.
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