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Old Thu Dec 1, 2011, 08:42 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,407
Glad to hear you are doing well. All those drugs are very hard on your system. Most think the cytoxan is the worst but many find the anti-biotics and anti-fungals are much harder on body. John was on them for about 4 months and they really messed him up. Many of the drug studies done on safety with anti-biotics and anti-fungals are usually short term studies, usually for 28 days. So they really don't know the side effect/adverse reactions with long term use at therapeutic doses. The good thing is that many issues resolve or improve once you are off all meds.

John's whites recovered first, then red cells and his platelets are still below normal.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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