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It is hard for me to judge his energy level and fatigue. He still walks a mile a day but it takes him about 40 to 45 minutes. Last year he was able to go further faster. He has learned to live with less energy. He sleeps 10 to 11 hours a night and usually naps for at least an hour during the day. The first two years after his diagnosis were the roughest. He just had to learn that he had to do things slower and less of them. He is losing strength but I don't think that is all the fault of MDS. Hopes this helps a little.
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Joan, wife of Don, 80, diagnosed MDS-RCMD 2006, on 300 mg Aranesp every 2 weeks. Only RBC affected by MDS.
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