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Old Thu Dec 8, 2011, 03:01 PM
MASamaha MASamaha is offline
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Join Date: Nov 2011
Location: Canton, Ohio
Posts: 6
Chest Pressure w/MDS and Vidaza

My husband has recently been diagnosed with MDS and has gone through his first round of Vidaza which he completed on November 23rd, has transfusion's done weekly (prior to his last transfusion yesterday his WBC was 1, RBC 2.72 and HGB 7.8). I am still new to all of this terminology and disease and unfortunately his current local oncologist we are not that comfortable with, he is not very open to asking questions and I am in the process of trying to convince my husband to change doctors. His does have an oncologist at the Cleveland Clinic (apx 50 miles away)that he does like but has his weekly CBC's, transfusions and Vidaza are done with his local doctor. After all of this my question or concern is...he has been experiencing the typical shortness of breath but also has some chest pressure that comes and goes. At his last CBC he did mention the chest pressure to the nurse who told him not to mess around with chest pressure and the next time it happens to go to the ER BUT after she mentioned it to his doctor the doctor said it was probably due to the low HGB count. The doctor did not actually come out to speak with us just gave this info to the nurse to relay to us. Now that the nurse has said what she did it has him (and me)totally worried about a heart attack or stroke. Does anyone have any experience with chest pressure, is it common with MDS or even possibly a side effect of the Vidaza? Prior to the MDS my husband has generally been a healthy 62 year old, exercised,watched his weight and did not have any prior heart issues. Any information would be helpful. Thank you all.
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